Tag Archive | Pain

Sickle Cell Disease Crisis In The Hospital Video/Vlog

Hey Readers! I just uploaded another video for you all on my YouTube page. Check it out and let me know what you think. Don’t forget to subscribe, like, and comment!! This video wasn’t all that long; I just wanted to let y’all know what’s going on with me while it’s happening, not months later. Let’s get Sickle Cell Disease awareness out there people!

What Sickle Cell Pain Feels Like

Having Sickle Cell, I’m often asked the same question over and over again: what does Sickle Cell pain feel like? Every time someone ask me this I never have a straight answer. The reason why is because Sickle Cell pain can’t be described to someone who doesn’t have it. I say that because Sickle Cell pain is literally like no other pain. People without the disease have never and will never feel this pain. All I can say is that it’s excruciatingly painful; as a matter of fact when you look up Sickle Cell pain that’s how it is always described: excruciating pain. It’s so painful that when I’m going through a crisis I often wonder how my body is able to stand so much pain (yes, it’s that bad). Different people at the hospital have asked me this, that’s why I’m writing this blog. And yes, I’m still in the hospital, sadly. They don’t know if they want to give me a blood transfusion or not. If they don’t, I’ll be able to leave tomorrow (fingers crossed). Later readers!

Living with Sickle Cell Disease 2

Well I’m in the hospital once again. People are always shocked by how often I have to go to the hospital, but for me it’s just normal. I’ve been here for four days now and should be released sometime today; so this hospitalization is actually one of my shorter stays. I’m usually in here for a week or more. I’ve been having really bad stomach pains so that was the reason for this time. I didn’t even know Sickle Cell pains could be in the stomach but my doctors say that must be what it is, and plus while I was here my feet started hurting too and I know that’s from the Sickle Cell, so I guess their right. I’m so ready to go home! I’ve been getting sick a lot lately and haven’t really had the time to do anything. Hopefully after this my next crisis won’t happen for awhile. I’m still trying to get me and my moms jewelry business up and running, and being sick all the time is making that task almost impossible. I’m not a quitter though so it’ll get done. I’ve done so much with it already so I’m not giving up. Anyway…at least these past few visits to the hospital hasn’t required me needing anymore blood transfusions, I’ve had so many that I’ve lost count of them years ago. That’s why I have iron overload now which, of course, isn’t good. I’ve been in this hospital so many times that all the nurses know me (and my family) by name! I guess that’s good though, because when I come they know exactly how to care for me (including the doctors). Yeah, I may be in this hospital a lot but I am still truly blessed. My motto is: someone always has it worse. So even though my situation isn’t the best, I just constantly remind myself of that. That really helps too, for those days when I’m feeling sorry for myself or am in a lot of pain. Someone always has it worse… Bye!

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