Hey my fellow Sickle Cell Warriors, and my lovely Readers! I just wanted to do a quick blog updating you all on how my hospital visit is going; this won’t be too long because I’m going to be doing a vlog soon also. Well, sadly I’m still in the hospital, I’ve been here now for a week and I’m sooo ready to leave! I thought for sure I would be leaving today, but of course, that’s not the case. The Doctor put me on a Magnesium I.V. drip, so I know I won’t bee going anywhere today. Hopefully tomorrow (fingers crossed). As you all know, today is Easter; I was really looking forward to being home with my family for today, but that’s not the case. I knew I wouldn’t be well enough to go to church or anything, but I would at least be able to spend Easter Sunday with my family, and have a nice big dinner with them. But, as my Warriors know all too well: Sickle Cell Disease has a mind of its own, and could care less about what we want to do, or have planned. So, here I am, alone and in the hospital on a holiday (once again). There is a bright side to this though… my parents came to the hospital, which I kinda figured they would. But when they got here, they had a gorgeous vase of white lilies and roses for me! They are so pretty, and the smell has the whole room smelling good. They also got me a big chocolate bunny, anyone that knows me, know I love chocolate. I know to some, this may not sound like much, but when you’re cooped up in the hospital with absolutely nothing to do, and you’re feeling down about being there, the littlest things can make you smile. Plus I don’t get flowers when I’m in the hospital, because I’m always there. Sadly, I’m not the only one that’s sick today: my brother is also sick. He started hurting today, and I think they said he was hurting all over, too…..but my brother is so hardheaded! He never goes to the hospital, he just stay home in terrible pain. I don’t know why he does that, especially when he is always lecturing me about going to the hospital. Oh well, I just hope he gets well soon, I hate when my brother is in pain, especially since I know exactly how bad that pain can be. Anyway, I hope you all had a great Easter Sunday, and to all my fellow Warriors: STAY STRONG!
Hey Readers! I just uploaded another video for you all on my YouTube page. Check it out and let me know what you think. Don’t forget to subscribe, like, and comment!! This video wasn’t all that long; I just wanted to let y’all know what’s going on with me while it’s happening, not months later. Let’s get Sickle Cell Disease awareness out there people!
Hey Readers, I’m going to start back doing my Quote Of The Day, blogs. I really enjoy reading and finding the right one, I really hope you all enjoy them as well. When I read this one I could really relate to it; I may cry a lot when I’m in pain from a Sickle Cell crisis, or from frustration, but that by no means makes me a weak person, nor my fellow SC Warriors.
Hey Readers! So, I’ve been wanting to start a YouTube channel for YEARS now; but I was very hesitant about it so I just kept putting it off. When I started this blog, that sort of took my mind off doing vlogs for awhile…but every time I get sick it’s so difficult to write my blogs because of all the pain and medications. So, I finally decided to start making vlogs while in the hospital. It’s much easier to talk to a camera instead of having to compose a blog. I will definitely keep making blogs, but I would LOVE if you all could check out my very first video on YouTube. Don’t laugh at my page y’all, I’m still trying to figure out how to use everything, lol. I wanted y’all to be the first to know, because even though I don’t have a lot of followers, the ones I do have are so supportive. Thank you! Leave your comments under the video, and subscribe. Thanks again, y’all! https://www.youtube.com/watch?v=RFy_SPGPYIo
Hey Readers! Today has been a very trying day for me. Remember I was supposed to be out of here Monday? Well, that wasn’t the case; I’m still in the hospital. The Doctor that was supposed to figure out if I could go home on oral pills or I.V. antibiotics, still didn’t know which one I needed. The lab was still testing my blood cultures, so he couldn’t do anything. I accepted that, but today I was sure he would have his answer. My Primary Doctor came in this morning, and he’s tired of this cat and mouse game too. He said he was going to call the other Doctor, and tell him he needs to figure out what to send me home on, and do it. But, of course, I haven’t heard anything from him, I don’t even know if he’s coming today. I’m just ready to go. On top of all of this, I’ve been feeling terrible all day. I’ve had a headache literally, all day long, and I’ve been feeling nauseous too. I want to get out of here before something else happens, and with the way things have been going, I wouldn’t be surprised if it did. If they don’t discharge me by tomorrow, I’m going to sign myself out. There’s only so much patience a person has, and I’ve reached my limit. I really don’t want to miss Thanksgiving once again, so if that means signing myself out, that’s what I’ll do. I haven’t even been able to eat, just looking at the hospital food makes my stomach churn. Thank goodness, I have some other stuff besides that here to eat. Tomorrow I’m out of here, whether the Doctor has the results, or whether I sign out myself, I’m out of here! I want to go back to being the girl in the picture, not the girl laying up in the hospital…it’ll happen, I’m not going through all of this for nothing. I’ll let you all know what happens. Later, Readers!
Hey Readers! A lot has happened in the last two days since I wrote the last blog. Remember in my last blog I was debating on whether or not to go through with the procedure to have fluid sucked out of the abscess in my right hip? Well, I didn’t have to make a decision, my doctor made it for me. He had them do a C-SCAN on me which is different than a MRI. The problem however, was that because I have Sickle Cell, they couldn’t give me the contrast which would have allowed them to see exactly how much fluid is in the abscess. So, because of this, the doctor decided against having the procedure done. Since the abscess isn’t hurting me as badly as it was, he’s just going to continue with the antibiotics. Now, because he wants to do that, some other problems have arisen. He wanted to have a Pick-Line put in my arm because it’ll last longer than the central line (needle in my neck) I have now, and I could go home with it. Well, it turns out that since I’ve had a port before I’m no longer a candidate for the Pick-Line; because of placement and some other crap. They said I can have a Tunnel-Line put in though, but…..I’ll have to wait until MONDAY…MONDAY! When my nurse told me all of this (just this morning) I wasn’t even shocked anymore. Who knew one hospital visit could have this many things go wrong and happen?! So, come MONDAY, ugh, they will put in the Tunnel-Line, which is better than a Pick-Line it’s almost like the port I had so I can go home with it and it’ll last longer than the Pick-Line. The reason it’s important that I go home with one is because the doctor is going to send me home with I.V. antibiotics; since he decided not to do the procedure I’m going to have to be on antibiotics for weeks. The I.V. antibiotics will work faster than the pill form. I just want to go home, I don’t care what they do at this point, I just want them to do it so I can be out of here! Last year I missed Thanksgiving because I was in the hospital sick, I don’t want to miss it again. I already had to spend my birthday here, so I’ll be very disappointed if I miss it this year too. As always, I’ll keep you all up to date on what’s going on here, when I know something, you’ll know. Later Readers!
Hey Readers! Bad news: The abscess hasn’t changed at all, it’s the same as when they did the first MRI. So, that means either the antibiotics aren’t working, or it’s going to take a lot longer before it takes affect. The doctor ordered them to perform the procedure to get the fluid out. My Primary Doctor came by this morning and said he didn’t think the procedure needed to be done, but that he understood why the other Doctor wants to do it. My Hematologist also said the same thing. My Primary Doctor said it was ultimately up to me whether I have the procedure done or not. I have no idea what to do…go through with the procedure and risk it not working, then I’ll have gone through the pain for nothing, or don’t do it and my hip will stay hurting until the antibiotics take affect…I don’t know what to do. To do the procedure, or not to do the procedure, now THAT is the question! HELP lol I have no idea what to do. Ugh…later Readers!